Am Looking for new writers, contributors, also Positivity Posters MeMe makers. Nothing has been done since Dec 2015. And I account for that part as I am staff and writer.. We need; facts, Personal story section, Healthy Eating Section, Exercise is Hard but for the ones who want to – I need someone to write a story on low impact exercises and everyday chores that can get you up and about. Since the previous people gave up and stopped writing AND LET THE SITE FALL ASLEEP. I am so glad I was cleaning out my WordPress account. Because I have been looking for a voice for the common everyday person who needs answers that could help them. Something anyone anywhere can do. Any new research can be posted and verified.
I need a lifestyle writer, A Ask Fibro Mom, Ask Fibro Researcher, The Vent Room, Medicine War Columns; One Pharmaceutical way, One Alternative Medicine Way Writers. Personal Life stories, and General Information Stories and Deep Interest Columns on Fibromyalgia
We need Facts, True Life stories, Healthy Eating Habits, New Research, and Alternative Medicine. Let us bring this Magazine and Site a world of information for anyone to understand….. Please if interested please fill in the form below. So I may get a hold of you for an online interview. Thank you let you let us be the magazine that survives by its loyal patrons. Contributors to any stories will be checked for factual information as we will not be full of wishful thinking but truthful. Let us make this most popular magazine ever. Can not wait to hear from many supporters to keep this site alive
That people couldn’t comprehend that a person could look perfectly well on the outside while going through a raging storm of pain, incredible exhaustion and other symptoms baffled me. The lack of comprehension wouldn’t have been so bad if it wasn’t often followed with judgements and suggestions of how I could shake off my pain with positive thinking, meditation and the host of never-ending recommendations.
I was still coming to terms with my diagnosis, learning how to navigate life with a chronic pain condition and this was complicated by the need I felt to validate my suffering to others who didn’t seem to believe (doctors included). Looking back I wish I had been firmer, braver and bolder. Here are some of the things I wished I…
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Most people do not know that I struggle with fibromyalgia. Chronic deliberating pain that often makes it impossible for me to complete simple things….like combing my hair and buttoning a shirt.
I received the diagnosis of Fibro and borderline Lupus in the military after being in for 16 years. Just like many others, I thought my persistent pains and aches were just a part of the toll of running, numerous deployments and working in difficult enviroments. After 2 days of intense all over pain, my doctor informed me that my body was undergoing a major change. There was no cure and that my symptoms would get worse as I got older. I begin to realize that “late nights” would take on a different meaning for me.
My love/hate relationship with my body began shortly after that. “I will fight this!” I vowed. I didn’t realize how hard the battle would be. After retirement, I continue to exercise and eat right. My body fought back…with a vengeance. Reminding me that no matter how hard I tried, It would always be ahead of me in the race. Always one lap ahead of me…the only thing I could do is try to catch up. To keep running!
My laps are never easy. My body gives me signs and symptoms when a pain flare is about to occur. My body warns me of impeding rain, I plan accordingly. It tells me when I have been on the go too many days in a row, I take a day of rest. It warns me when I am stressed, I plan a solace …
I bargain with my body daily. Some days I win, and some days I lose….never graciously. My defeats come with intense stiffness, excruciating pain, sleepless nights, light sensitivity, pain and memory issues Some flares last for a couple of hours to several days. My pain is worse at night, when I am alone and the world is fast asleep. Late nights curled up in a ball under a heated blanket filled with insomnia and pain. Some nights I have often sat outside watching the stars….praying….waiting on the sun.
When I wake up, I feel like a new person….literally I am.
My ability to push through my pain daily keeps others wondering. I look great on the outside, but Im constantly trying to keep up. My high pain tolerance level allows me to operate normally on a pain level that many would have to seek medical attention for.
My trips to the ER come every 4 to 6 months. The nights when I can no longer find a home remedy to bring my pain level down. Over the counter meds, epson salt baths, yoga , exercise and meditation lose their strength. I become immune to regular pain relievers . Even prescribed narcotics cease to dull my pain. I sit for endless hours in an ER to receive a shot that lulls me into a peaceful state.
It is during this time, I often mentally battle with my ability to continue on this journey. It is during this time I understand how many people with chronic pain have opted for the presumed “easier way out.”
I’m grateful my spirituality prevails and the morning brings a joy! I count my blessings after late nights and I am truly thankful….thankful that Im not confined to a bed or a wheelchair. Thankful that I know that each flare will pass….eventually.
Thankful to see the sun peek through, reminding me that I made it through to another beautiful day. Thankful that through it all, I’m still running…
If you are struggling with any pain, whether physical or mental.I pray you find the strength to wait on the sunrise.
Peace, Love & Empowerment
So this weekend I was able to reflect on many things and reflect I did…Unfortunately I was admitted to the hospital on Saturday. I have battled fibromalaygia for 7 years and often the chronic pain I experience is unbearable! I am always in pain, however some days, I have what is referred to as a flare. My children often push me to go to the ER on my worst days and this weekend I obliged…even though I knew it would not be pretty…My intense pain is always met with a shot…in my hip. Its not fun as you can imagine, but I have pushed through for many years.
This weekend, I felt different…the doctor informed me that I would be staying over night, because my blood pressure was low. Needless to say over night, turned into a weekend and I reflected….Although I often keep my struggles private…I have learned that crosses can not be beared alone and as I sat in the hospital bed…several reminders were dropped into my spirit.
I thought back over my life, my journey, my accomplishments and I was reminded about all I have given and done for others over my time here on earth…its been too much too count. I was reminded that I must take a little more time for me..I was reminded that I was expendable and also informed that I was not getting any younger. Reminded that some things are not that important and that some people are very important!
Reminded that I must not continue to give until I am depleted…My 2015 resolution was once again dicphered and I analyzed it well. I fought through the fog of fibro and will continue to fight…
I was thankful for the family and friends who checked up on me.. the ones who reminded me of all the “reminders” I often forget about,,,grateful for the texts and phone calls.
This post is simply a reminder to each of you that life is simply what you make it…live it and live it well, beacuse you only have one and that “one” is valued by many.
Peace, Love & Empowerment
Spoonie= someone who lives with chronic pain who identifies with Christine Miserandino’s Spoon Theory- a theory that illustrates how people who are chronically ill must carefully manage their limited energy, or “spoons”.
Stock headache/pain photographers need to widen their scope.
Maybe some chronic pain sufferers look like perfectly made-up young women with perfectly symmetrical features and perfectly styled hair, holding their pore-less, freshly powdered faces while in the throes of pain, but I’m willing to bet it usually looks more like this:
or even this
(Why would I eat the corn when I can smoosh it against my eyeball? It goes right through you anyway.)
In reality, pain is not pretty. Bras are off, crying is on, and makeup and hairstyles go every which way. Features are crumpled, made-up yoga poses ensue, and there is usually a fair bit of snot, right?
Here’s the challenge spoonies:
Help me set the record straight by submitting your most scrunched-up, messed up, real honest-to-God pain face to firstname.lastname@example.org before February 28th, and I will publish a blog post that exhibits of collection of pain faces so real that people will laugh at us (because who are we kidding- these faces are ridiculous), but also see that our pain is often visible, just not usually to the world at large.
Please include your name, illness(es), and where you are from. [NEW: Also, if you like, include a little write up describing the pain you felt in that moment, and perhaps what coping strategies you were able to use.]
If you are feeling really brave, post your selfie on twitter @brainstorm83 or instagram @lousongmade with the tag #spoonieselfie.
I want all bodies and experiences to be reflected in the images we are bombarded with daily. Time to throw so-called invisible illness into the mix.
(originally published @migrainebrainstorm.com)
It’s the season for merriment, goodwill, and unbridled holiday joy. For those of us with chronic pain, it’s also the season for increased pain, fatigue, and stress. I know I’ve had a ton of holiday obligations with work interspersed in between. I’m sure all of you have felt pressured to “get with the (holiday) program.” I’ve been exhausted more than normal and been in huge amounts of pain. My last two Christmases are today, so the light at the end of the tunnel is in sight!
My New Years will surely be a mellow one. My poor body can handle anything else. Lots of love and gentle hugs to you all in this holiday season!