Well, I figured it was about time I got started. I expressed an interest in blogging for Fighter Zine last week and was graciously invited so I best make good on both parts. First and foremost I need to tell that this is my first attempt at blogging so I will require some patience from all of you. People have been hounding me to write for years but I have always found some reason or another not to bother. I have decided that this is my year To Make Things Happen so here is something happening. I am no longer allowed to use my technical inability, lack of hand/eye coordination, inability on concentrate on anything for more than five minutes, fear of spelling/grammatical error or fear in general as excuses.
I have not had a chance to read every post on this blog yet but it seems many of you are from the U.S.A. I am from Canada and this will become evident with my gratuitous use of the letter “u” randomly spliced into words that would be fine with just a letter “o”, constant complaining of cold weather and the awesome symptoms it brings on and the self-deprecating humour (see?) that is not only a defense mechanism but a national pastime, for a bunch of us anyway.
I had planned that my first blog a condensed version of my whole Fibromyalgia story, but then I realized if I did that I may have nothing to post about in the future so I will jot down a brief history. After piecing it all together with a variety of physicians it has been established that I more than likely have had Fibromyalgia since I was fifteen. I am thirty-eight now so it’s been a long time of not knowing. The symptoms came as followed: severe anxiety, fatigue, depression, weight gain, muscle tension, TMJ, despondency, inability to concentrate, random pains throughout the body, severe migraines, visual disturbances ( double and blurred vision caused by acquired Nystagmus – the onset of involuntary eye movement and the sole subject of a future blog), numbness and/or tingling in all extremities, problems concerning all areas of the digestive system and hormonal and reproductive issues. I’m sure I’m missing a few but the gist of it is there. After many MRIs, scopes, ultrasounds and blood tests I was diagnosed with Myofascial Pain and Polycystic Ovarian Syndromes in 2011 and finally Fibromyalgia in January of 2012.
I should mention that my father was diagnosed with Fibro in 2002. This vital information was brought up to many a doctor and not even considered as a possibility until recently. I just found out that an aunt on my mother’s side was recently diagnosed so I am definitely a member of Camp “Fibro Runs In the Family”.
How do I personally cope? I just seem to, I guess. After years of being told there is nothing wrong you start to believe it. I’d ignore the problems, I’d crash, get a whole new host of symptoms, check them out, be told it’s all in my head, continue about my business, get to a level where the old and new symptoms are manageable and repeat for twenty-three years. Even with knowing what’s going on I have a hard time not just pushing through….it’s not that I am being a martyr it has just been how I’ve dealt with it all these years. I am slowly learning to take things easier, eliminating some stress factors and trying to adopt some better habits. Fortunately for me, I do not suffer from the all-over chronic pain that many do; my pain seems to attack one or two body parts at a time for long periods of time (right now it’s my feet and it’s unbearable). My problems are mostly because of the nystagmus and Fibro Fog on a day-to-day basis, however it can all flare up at once and be most unsettling. The very reason I wanted to start this blog was to find others similar to me and to educate the masses that Fibromyalgia is so much more than preconceived.
I am not taking any medication at the moment. I have taken a full pharmacy of antidepressants to no avail and want to see what I can do naturally before I give another prescription a try. I do take an outrageous amount of vitamin D, and normal doses of B-12, B-50, Omega 3-6-9 and a multi just to cover what’s missing. I’ve eliminated wheat from my diet, cut down on bad carbs and I’m getting better acquainted with produce. I am trying to exercise more but the truth of it is I work in the service industry and that takes up every ounce of energy I have. I am trying very hard to not use my illness as an excuse for that but I’m sure I don’t have to explain here of all places that the energy on reserve first and foremost must be used to keep up with the necessary. It’s also really cold here….. 😉 I have a few habits I’m trying to break (another blog!) and slowly but surely I will get there.
I type very slowly so that seemed not very brief at all!
I would like to thank you all who took the time to read a bit about me. I’m very excited to get started here and looking forward to learning more and sharing with all of you. I have already learned so much just from reading the earlier posts and am overjoyed at being a contributor.