I honestly never imagined the hard work that it takes to raise a child with fibromyalgia. Every single day is ten times harder now, ten times more painful for me every day. But I don’t harbor regrets. If I had it to do over again I would get pregnant and I would have my Son…again, he’s my life. The truth is though, it’s tough work! As a fibro mommy I tend to find the emotional aspect of raising a child just as hard if not harder than physically raising a child. There are the little things, 3 square meals a day, dressing, bathing, entertaining, going for walks, feeding, ect, but there’s also the tantrums, the screaming, the telling me “no” constantly, hitting me, kicking me, throwing things at me, destroying the house…all these things emotionally ware on me day in and day out and the one thing I’ve learned is that we need a break!
I personally don’t have a support system at home where I can hand my kid over to a relative to watch him so my muscles and bones can have a break. A lot of people don’t have that one person to say “hey I’ll take him off your hands for a day.” That has got to be the hardest. My husband works constantly and he’s too tired to pick up the load but I dream of that day when someone offers to take my Son just for a day. If anything it would be good for him. But his grandparents and Aunts and Uncles either live too far away or show no interest which makes me sad. Sad that I can’t just get a break and sad that no one wants to spend quality one on one family time with my son. Whatever happened to people picking up the slack and helping out a relative? Everyone has this fend for yourself, it’s not my problem attitude and I’m just sick of it because as sick as I am…I do OFFER to help someone if they are in need. Especially if they have a child. I would go out of my way on the worst day ever than to let someone not be able to complete a task or get the rest they need (i.e. go to work).
As a fibro mom, my work never ends. It is 24 hours a day 7 days a week and if I’m lucky he’ll take a nap once a day. I love my Son to pieces, there’s nothing wrong with him, it’s not his fault Mommy is tired. Mommy just cannot keep up sometimes. I may have been un-lucky in my ventures to get someone in my family to reach out and give me a day off…but hey at least there’s a good lesson from it…we do need that support so if you have someone who can help out don’t be afraid to ask even if you think they will say no, keep asking. Don’t feel ashamed to ask for help. Besides, people who aren’t sick pin their kids off on other people all the time. All we’re asking for is a little support, we’re not asking to pin our kids on other people; we’re asking for help so that we can be the BEST parent that we can be at ALL times.